patients

Straight Out of Star Trek: The Biomedical Boon of Virtual Reality

Once confined to the realms of science fiction, virtual reality (VR) has crossed over into the real world in a wide array of fields, including scientific research and clinical medicine. In the IRP, several researchers are utilizing the cutting-edge technology in their efforts to improve human health.

Susan Persky, Ph.D., for instance, runs the Immersive Virtual Environment Test Unit, where she uses VR to simulate how genetic information might affect doctor-patient interactions and influence patients’ emotions, beliefs, and decisions. She has also put the technology to use studying the food choices of overweight and obese individuals by presenting them with a simulated buffet. Meanwhile, John Ostuni, Ph.D., explores how VR might help doctors diagnose or treat patients, such as by providing access to physical therapy without going to the hospital. And Victor Cid, M.S., creates virtual reality scenarios for the Disaster Information Management Research Center that can train emergency personnel how to more effectively respond to major crises.

On Friday, February 23, they joined several NIH colleagues for a Reddit “Ask Me Anything” (AMA) to answer questions from the public about how virtual reality might change the way medicine and research are practiced and ultimately make people’s lives better. Read on for some of the most interesting exchanges that took place or check out the full AMA on Reddit.

A summer student in the lab of Susan Persky, Ph.D., tests out a virtual reality headset

Summertime Brains: Francia Fang

Francia Fang, who is currently a junior at Duke University, spent her 2017 summer working in the lab of NIH IRP Senior Investigator Dr. Zhengping Zhuang. During her time at the NIH, Fang investigated how genes influence the development of brain tumors and also shadowed doctors as they met with brain cancer patients.

The video above, featuring Fang, is the first in a series of profiles highlighting IRP summer interns who worked in NIH National Institute of Neurological Disorders and Stroke (NINDS) intramural labs this past summer.

Guest Blog – Aaron Ramsay

Reblog via The Children’s Inn at NIH: Family Stories.

Photo of Aaron smiling on a boat

When I first came to The Children’s Inn in June of 2016, I had no idea what it would mean to me. The next several months, though, certainly ended up being some of the most transformational months of my life. I first came to The Inn as a 19-year-old who had somehow managed to finish his first year of college, even while dealing with a harsh genetic disease known as sickle cell anemia. After staying at The Inn for nearly five months, I left as a man, entering his second year of college, having been healed from the disease that once shaped his life.

John and ALS: Participating in an NIH Clinical Study

“I kind of made it a mission of mine to find out as much as I can, what’s available out there as treatments, trials,” John says, “and just my way of giving back, whether it helps me directly or somebody who comes after me.”

A New Life for Lifesaving Data

Data sharing (e.g., via publication, collaboration, and repositories) ensures that data are used and published more broadly than they otherwise would be, promoting more rapid translation into biomedical and scientific advances, thus allowing American taxpayers who fund our research the opportunity to benefit more fully from our work.

Doctor Joan Han and patient, NIH Clinical Center

Inspirations in Science and Medicine

You never know when inspiration will strike. I still remember the day that Dr. Francis Collins came to visit my high school genetics class. At that time, Dr. Collins was the director of the Human Genome Project, an international research program aimed at uncovering the genetic building blocks essential for human life. Imagine our recent excitement when Dr. Collins, now Director of the NIH, specially attended a reception for clinical fellows at the Clinical Center.

NIH Clinical Fellows Gathering, Collins, Gallin

Top 5 Reasons to Study Rare and Undiagnosed Diseases

What is a rare disease? And how rare is “rare”? When I began my research at the NIH, I had a textbook understanding of rare diseases, but now, after four years as a postdoc in the IRP, I understand a bit more of what it means to the patients and researchers who try to help them.

Rare Diseases Population

The Best Place on Earth

If you've been asking yourself what good your taxpayer dollars have been doing, let me tell you a story. I work at one of the most amazing places in the world. Every day I come in to work energized to see patients, to strategize how to bring new findings into the clinic and talk to brilliant scientists and physicians.

James Gulley and Patient at NIH

A Sweet Time of Year at the Clinical Center

No need to stand in the cold for a glimpse of the Macy’s Thanksgiving Day parade when you can see it at the NIH Clinical Center! Want to go to space and have a look at the Apollo capsule? It’s here, too. Starting in 2004, the NIH Clinical Center has presented a wonderful annual display of gingerbread houses built by teams of NIH staff.

Anatomy of the Gingerbread Man