Noah, 22, of Lusby, Maryland, is a poet and writer, and has been an NIH study participant since she was 2 years old, when she was diagnosed with a rare metabolic disorder called abetalipoproteinemia (ABL). In addition to participating in an IRP study of metabolic disorders like ABL, Noah also has been part of the NIH’s Undiagnosed Diseases Program for several years, since many of the symptoms that make daily life difficult for her cannot be explained by her ABL diagnosis. Noah credits William Shakespeare with instilling a love of literature in her. When she’s not reading world literature, she’s writing plays and short stories as well as poetry that her mom, an artist, illustrates. You can learn more about Noah’s story by visiting the website of The Children’s Inn at NIH, where she stays free of charge when she is receiving treatment or undergoing tests at the NIH.
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This page was last updated on Thursday, January 20, 2022