Rare Disease Day at NIH 2023

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NIH Natcher Conference Center (Building 45)

Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Since 2011, the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center have sponsored Rare Disease Day at NIH as part of this global observance. Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments.

The goals of Rare Disease Day at NIH are to:

  • Demonstrate the NIH commitment to helping people with rare diseases through research.
  • Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
  • Initiate a mutually beneficial dialogue among the rare diseases community.
  • Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
  • Shine a spotlight on stories told by people living with a rare disease, their families and their communities.
  • Bring together a broad audience including patients, patient advocates, caregivers, health care providers, researchers, trainees, students, industry representatives and government staff.

The 2023 event will be held in person as well as broadcast via virtual livestream on NIH VideoCast, with the event archived for replay afterward. The event agenda features panel discussions, rare diseases stories, exhibitors and scientific posters. The event is free and open to the public.

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This page was last updated on Friday, December 23, 2022